We are dedicated to elevating care for all patients living with Ramsay Hunt syndrome (RHS) through comprehensive support, education, and advocacy.
Every story matters, and every donation helps us bring more awareness, fund vital resources, and connect patients and families with the care they deserve.
Together, we can turn understanding into action and hope into healing.
What is Ramsay Hunt Syndrome?
Understanding RHS
Ramsay Hunt syndrome (RHS) is one of the leading causes of facial paralysis. Along with sudden onset (within 24-72 hours) facial paralysis, RHS often presents with severe ear pain, dizziness, a blistering rash of the ear, and hearing loss. While often confused with Bell’s palsy, RHS is typically more severe at onset and patients are less likely to make a complete recovery.
The Ramsay Hunt Syndrome Foundation (RHSF) was founded in 2024 to elevate the care and improve the lives of all patients living with RHS.
The RHSF Mission Statement
Who We Are
The mission of the Ramsay Hunt Syndrome Foundation is to elevate care for all patients living with Ramsay Hunt syndrome (RHS) through comprehensive support, education and advocacy. We are dedicated to advancing research, improving early diagnosis and providing resources to enhance the quality of life for individuals affected by this rare neurological disorder. Our goal is to foster a community of hope and empowerment, ensuring that every patient and family receives the care, information and compassion they deserve on their journey toward recovery.